Humming Bird, near the restaurant I had lunch at on Monday
The last time I had X-rays done, it took 90 minutes - they were having computer trouble. Monday it took 15 minutes. As a result I was over an hour early for the MRI. They had me scheduled for the "large aperture machine" but a standard machine was free with no waiting, slip off your pants and we are ready to go. They wedged me into the drain pipe and beat on it for about 40 minutes. (If you have ever had an MRI you know what I am talking about.) I thought they were going to have to grease me up, to get me out, I unfolded like an artificial christmas tree coming out of the box when she slid me out of the tube (the operator said, ask for Mag-1 the next time, you will be more comfortable.)
Then I had a couple of hour break before seeing the neuro-oncologist. I went shopping and went to lunch. I needed a new pair of fat man jeans, my appetite came back faster then my ability to exercise, I may have reached a new high. Across from me at lunch was a teenage SOD, son of a doctor. Easy to spot, looking disinterested in the world, sitting there wearing $1,000 in clothes.
So the update part of this. My spine is were it should be and the alignment remains good. The tumor is not growing, but will still needs to be watched. I am making progress on rebuilding strength and control, there continues to be improvement in the sensation in my legs and feet. The odd bulging at the bottom of the ribs on my right side, is normal. The "intercostal muscles" (I actually knew what they were back in my gym bunny days) no longer have nerves going to them, and the ribs will move and things will bulge that didn't bulge before. Nothing wrong, the new normal. I need to lose weight, the Doctor is more concerned about rebuilding cardiovascular strength and endurance then he is about a number. I was off my game for a couple of years, I need to work on that. For the first time in over year year, when I walk down stairs it does not feel like my right knee is going to buckle out from under me. The fact that I continue to make progress, is a good sign. Someday I will plateau - the Doctor reminded me that there will be some permanent nerve damage.
Where from here, back in the drain pipe in 90 days, X-rays of my spine in 90 days, and another follow up visit. If that goes well maybe six-month intervals after that.
FABULOUS! keep up the good work!ReplyDelete
I am surprised you got away with so litttle nerve damageReplyDelete
Ps still chuckling over the phrase " fat mans jeans"
good news indeed.ReplyDelete