I am working on a research project on health care decision making (again - another one.) Part of this one was interviewing a couple of dozen experts - I was intimidated by the thought of interviewing a professor at Harvard Medical School, and she was the nicest person you would ever want to chat with - if I was dying, I'd like her as my doctor.
One of the topics was helping patients develop and articulate goals of care. As an example I talked about my experience three years ago. When asked what my goals were, I was clueless. I said, Well I'd like to survive. And I was asked, "then what? Go home, "then what? To which my answer was in "90 days I want to fly to Germany and ride on a Zeppelin." That usually resulted in the person asking me about my goals, looking in the chart for what meds I was on, or to see if a psychiatric exam had been ordered. One of the doctors came back the next day and said, "I did a google search, you were serious!" Yes, I knew I needed to be well enough to walk 150 feet across the grass, and climb 6 steps unaided to ride the Zeppelin, that was my intermediate goal. And I made it. If you are curious, there is a link to the You-Tube video of the Zeppelin ride on the right hand side of my blog.
So what is your goal of care?
I am not clear yet what is a goal of care.
ReplyDeleteThank you for being brave enough to venture a comment. A goal of care, is what do you want the outcome of this illness to be?
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